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Particulars
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By Chuck Hoskin Jr.
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Opinion of the friends. About 7,000 recognized uncommon illnesses have an effect on roughly 1 in 10 Oklahomans. The Cherokee Nation's first Uncommon Illness Summit on Nov. 21 marks a vital step in addressing the too-often missed well being care wants of this inhabitants. The summit embodies the tribe's deep dedication to serving to our residents with complicated well being challenges.
Cherokees deserve assist, remedy and hope, particularly those that have lengthy felt ignored by the well being care system attributable to their distinctive circumstances. This summit is especially significant to me and First Girl January Hoskin, who has brazenly shared her personal journey combating a uncommon illness. We perceive the profound bodily and monetary impacts of uncommon illnesses, not solely on people, but additionally on their households who’re making an attempt to navigate expensive and unclear healthcare selections.
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This informational assembly, hosted by Cherokee Nation Well being Companies, goals to shut gaps in entry to healthcare and be sure that each Cherokee Nation Well being Companies affected person feels seen and heard, regardless of how uncommon their situation. Members will hear from medical specialists in neurology, rheumatology and infectious illnesses in each panel discussions and Q&A periods as they talk about multidisciplinary approaches to addressing uncommon illnesses.
First Girl Hoskin and I, together with the Uncommon Illness Committee fashioned in 2020, hope to convey individuals out of isolation and right into a supportive group. Nobody is alone and we’re collectively each step of the best way.
In accordance with the Nationwide Institutes of Well being, any illness that impacts fewer than 200,000 individuals in the US is taken into account uncommon, and greater than 90% lack FDA-approved therapies. The Cherokee Nation's well being care system, the biggest and best in Indian Nation, is dedicated to discovering options and rising sources for individuals with these circumstances. We’re elevating consciousness, advocating for coverage modifications, and constructing a rising community of help.
The November 21 summit represents a strong step ahead in well being fairness and group help inside the Cherokee Nation Reservation. I encourage anybody fascinated about or affected by uncommon illnesses to take part within the summit. Registration is free, with lunch and a useful resource honest from 11 a.m. to 12:30 p.m. Register at cherokee.org/rare-disease-summit, the place further particulars can be found.
The Cherokee Nation believes that nobody ought to really feel ignored or marginalized, and with this summit underway, we now have an actual alternative to amplify the voices of these combating a uncommon illness.
Chuck Hoskin, Jr. is the senior chief of the Cherokee Nation.
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