Prince Frederik de Luxembourg, son of Prince Robert de Luxembourg and Princess Julie de Nassau, died on the age of 22.
Prince Robert shared the information in an announcement on the Polg Basis web site, a corporation initiated by Frederik to assist with therapies and a treatment for the illness.
Frederik was born with Polg mitochondrial illness, a uncommon genetic situation.
“It’s with a really heavy coronary heart that my spouse and I wish to inform him concerning the loss of life of our son,” Prince Robert wrote within the assertion, sharing that Frederik had died on March 1.
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Prince Frederik, son of Prince Robert of Luxembourg and Princess Julie de Nassau, died at age 22 earlier this month for a uncommon genetic situation. (Grand Ducal Household Offic of the UK Basis / Pogl)
The day earlier than on the “Uncommon Illness Day”, Prince Robert shared that Frederik spoke together with his household, together with his brother Alexander and his sister Charlotte, in addition to cousins and one other prolonged household, “one final time.”
“After giving every of us with our farewells, of some sort, one thing smart, some directions, in Frederik’s true vogue, left us collectively with a remaining household joke of lengthy knowledge. Even in his final moments, his humor and limitless compassion, compelled him to go away us with a final chuckle … to encourage us all.”
He additionally wrote that Frederik requested: “Dad, are you pleased with me?”
“He had barely been in a position to converse for a number of days, so the readability of those phrases was as shocking as the burden of the second was deep. The reply was very simple, and he had heard it so many occasions, however at the moment, he wanted peace of thoughts that he had contributed every part he might in his temporary and delightful existence and that now he might lastly advance,” his father wrote.
Prince Robert known as his son his “superhero” in an announcement saying his loss of life. (Grand Ducal Household Offic of the UK Basis / Pogl)
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The assertion continued: “Frederik is aware of that he’s my superhero, since it’s for our entire household, and for a lot of good pals and now largely due to his Polg base, to so many individuals from everywhere in the world. A part of his superpower was his capacity to encourage and lead with the instance.”
Prince Robert defined that Frederik was born with POLG mitochondrial illness.
Frederik was not identified till the age of 14, “when his signs had been extra clearly and when the development of his sickness had grow to be extra acute.”
The illness causes “such a variety of signs and impacts so many alternative organ methods, it is rather tough to diagnose and has no therapies a lot much less a treatment. Recharge fully, it’s in a relentless state of exhaustion and at last loses energy.”
Prince Robert shared that Frederik was born with Polg mitochondrial illness, however was not identified till he was 14 years previous. (Grand Ducal Household Offic of the UK Basis / Pogl)
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Prince Robert stated Frederik “took” the chance to create a foundation to discover a treatment.
“Though it at all times made it very clear that I didn’t need this horrible illness to outline it, nevertheless, it was instantly recognized and helped to outline the Mission of the Polg Basis.”
In keeping with his father’s assertion, Frederik created the looks of the useful group in america and launched a line of fantasy clothes, inspired by Donna Karan.
“He gave himself energetic and actually to develop a number of fashions of mice and cell strains in Switzerland, america and Europe and to make them obtainable to additional facilitate Polg analysis.”
Prince Frederik helped discovered the Polg Basis, working in the direction of therapies and a treatment for the illness. (Grand Ducal Household Offic of the UK Basis / Pogl)
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Prince Robert concluded: “On behalf of Frederik, Julie, Charlotte, Alexander, Mansour and your entire World Polg neighborhood, we thank him for serving to this respectable trigger that can honor our son. We’ll focus decidedly on assuaging struggling for the neighborhood of Polg and different illnesses and situations a lot additional, related to mitochondrial illnesses.”