Public Comment on Federal Science Funding Regulation Disappears

Magdeleine Bradford-Butcher, a mother navigating her daughter's cystic fibrosis diagnosis, recently expressed her concerns about a proposed White House regulation that could affect federal science funding.

After her baby was diagnosed with cystic fibrosis, Bradford-Butcher was relieved to learn about Trikafta, a new treatment that dramatically improves life expectancy for affected children. Inspired by a physician's comment that her daughter might outlive her, she submitted a public comment on the proposal, highlighting the importance of research funding.

However, in an unusual turn of events, her comment was swiftly removed from the federal regulations website without any explanation. Legal experts have raised eyebrows over this unexplained action by the White House Office of Management and Budget, particularly as Bradford-Butcher's comment addressed crucial concerns about the potential impacts of political interference on vital research.

Source: www.statnews.com